Stand Up and Be Counted: Your participation in the NephCure Kidney Network patient registry is a chance for YOU to help researchers find better treatments and the cure for the rare diseases that cause primary Nephrotic Syndrome. Researchers need to know more about who has these diseases and how their health and lives are affected. Each person or parent/guardian of a child with these diseases that registers can have a positive impact on thousands as we march together toward a cure.
Get Notified of New Clinical Trials: Select the option to be notified about new clinical trials when you register. NephCure will let you know about new studies being conducted in your area.
Registering is Easy and Free: Fill out as much information as you can. Update your information every time something changes. Your information is kept secure, and personal information is not shared without your permission. Building the NephCure Kidney Network is a CRITICAL STEP in improving the quality of your life or a loved one’s and thousands of others suffering from these conditions.
If you are a member of NephCure Kidney Network (NKN) Steering Committee, please click here to access NephCure Kidney Network Steering Committee Portal.