3rd Annual NephCure Kidney Network Data Report

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2nd Annual NephCure Kidney Network Data Report

Your Electronic Health Records - What You Told Us
We recently asked NephCure Kidney Network participants to complete a survey about their Electronic Health Records.

NKN Annual Report
We are pleased to provide you with a copy of the 2015 Annual Data Report of the NephCure Kidney Network Patient Registry.

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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

The NephCure Kidney Network is an initiative of NephCure Kidney International (NKI). NKI is a U.S. tax exempt 501(c)(3) public charity established in 1999 with the mission of supporting research to find the cause, better treatment, and a cure for FSGS and primary Nephrotic Syndrome diseases. (EIN: 38-3569922)

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