Your Electronic Health Records - What You Told Us

We recently asked  NephCure Kidney Network participants to complete a survey about their Electronic Health Records. Thank you to those of you who responded! Below is a summary of what we learned from the survey.
 




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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

The NephCure Kidney Network is an initiative of NephCure Kidney International (NKI). NKI is a U.S. tax exempt 501(c)(3) public charity established in 1999 with the mission of supporting research to find the cause, better treatment, and a cure for FSGS and primary Nephrotic Syndrome diseases. (EIN: 38-3569922)

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