NKN Annual Report

We are pleased to provide you with a copy of the first Annual Data Report of the NephCure Kidney Network Patient Registry. The 2015 Annual Data Report summarizes the data provided by 350+ Registry participants collected from March 2014 to March 2015.

Click here for the full report

Please contact registry@nephcure.org This e-mail address is being protected from spambots. You need JavaScript enabled to view it with any questions.




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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

The NephCure Kidney Network is an initiative of NephCure Kidney International (NKI). NKI is a U.S. tax exempt 501(c)(3) public charity established in 1999 with the mission of supporting research to find the cause, better treatment, and a cure for FSGS and primary Nephrotic Syndrome diseases. (EIN: 38-3569922)

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