2nd Annual NephCure Kidney Network Data Report

We are pleased to provide you with the 2nd Annual Data Report of the NephCure Kidney Network Patient Registry. This report summarizes the data provided by 550 registry participants collected from March 2015 to March 2016.


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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

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