Informational Webinars

NephCure Kidney International regularly holds educational webinars about topics important to NS patients and families. In partnership with members of the NephCure Kidney Network project team or Steering Committee, these webinars are recorded and made available online for you to watch at your convenience. You can also check nephcure.org to upcoming topics! 

TOPIC: 
I'm Ready To Participate in a Clinical Trial.. Now What?
PRESENTER: 
Dr. Laura Mariani, Co-Investigator, NephCure Kidney Network

TOPIC: 
Demystifying Research 
PRESENTER: 
Dr. Jonathan Hogan, Steering Committee Member, NephCure Kidney Network

TOPIC: 
Nephrotic Syndrome 101




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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

The NephCure Kidney Network is an initiative of NephCure Kidney International (NKI). NKI is a U.S. tax exempt 501(c)(3) public charity established in 1999 with the mission of supporting research to find the cause, better treatment, and a cure for FSGS and primary Nephrotic Syndrome diseases. (EIN: 38-3569922)

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