Click Here To Help Set Research Priorities

One of the goals of the NephCure Kidney Network is to help researchers understand what is important to the patient community. Help us set priorities for researchers by clicking here to take our survey. 




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Established in collaboration with the Office of Rare Diseases Research (ORDR), National Center National Center for Advancing Translational Sciences (NCATS), National Institutes of Health as part of the Global Rare Diseases Patient Registry and Data Repository (GRDR) pilot project, partially funded through a Patient-Centered Outcomes Research Institute (PCORI) Award (1306-04903) for development of the National Patient-Centered Clinical Research Network, known as PCORnet.

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